Congenital Anomalies

Date of request

Organisation

Details

Feb 11

Birmingham Women's NHS Foundation Trust Intended use: Background for international paper on in-utero surgical correction of spina bifida Analysis requirements: Regional numbers and prevalence Case definition: All and isolated spina bifida Population: West Midlands residents

Jan 11

Heart Of England NHS Foundation Trust Intended use: To complete NSC FASP audit of isolated gastroschisis cases Analysis requirements: Count by year of:
1) Total Isolated gastroschisis cases born
2) Total Isolated gastroschisis cases detected antenatally Case definition: Cases with isolated gastroschisis

Oct 10

University Hospitals Coventry & Warwickshire NHS Trust Intended use: Analysis requirements: Incidence of neonates with diaphragmatic eventration/paralysis Case definition: Neonates with diaphragmatic eventration/paralysis Population: UHCW

Oct 10

Birmingham Women's NHS Foundation Trust Intended use: Completion of Fetal Medicine Audit - NSC FASP
Analysis requirements: Aggregated data (count of cases gastroschisis) by year

a) cases referred to BWH

b) Cases delivered to West Midlands residents
Case definition: Isolated gastroschisis cases
Population:
Time Period from: 01/01/2005 to: 31/12/2009

Sep 10

Birmingham Women's NHS Foundation Trust Intended use: To link to hospital records of CNS cases to ensure complete ascertainment for research project on outcomes.
Analysis requirements: list of cases
Case definition: CNS malformations - all outcomes (ICD10 Q00-Q07 inc. hydrocephalus).
Population: patients scanned, booked or born at Birmingham Womens.
Time Period from: 01/01/2000 to: 31/12/2010

Jul 10

Northern Lincolnshire and Goole Hospitals NHS Foundation Trust Number of Down Syndrome babies

Mar 10

Birmingham Women's NHS Foundation Trust Analysis requirement

i) All cases of CDH reported via CAR to WMPI during this period.
ii) Outcomes - stillborn/IUD, live birth, infant death/termination of pregnancy
Population - West Midlands
Time Period - 01/01/2000 - 31/12/2009

Nov 09

University Hospital of North Staffordshire NHS Trust Intended Use - Audit
Analysis requirement - Neonatal morbity and mortality asociated to coagulase negative staphycococcal infection & prevalence across the region
Population - West Midlands Area
Time Period - 01/01/06 - 30/10/09

Sep 09

Walsall Hospitals NHS Trust Analysis requirement - Incidence & outcome of ventriculomegaly and neural tube defects.

Case definition - Outcome including - termination, stillbirth, neo death, infant death & any long term follow-up

Time period - 01/01/2004 - 01/01/2009

Oct 08

South Warwickshire General Hospitals NHS Trust Cases with major anomalies - NTDs, abdominal wall defects, cardiac etc. for births at Warwick Hospital
Required for audit of ultrasound detection
01/01/04-31/12/07

Oct 08

Birmingham Children's Hospital NHS Trust Collaborative project (initial case-matching ascertainment)
teratomas any site
births 1995-2007
Scanned or born at BCH

Oct 08

Birmingham Women's NHS Foundation Trust Collaborative project (initial case-matching ascertainment)
teratomas any site
births 1995-2007
With postmortem at BWH

Oct 08

Birmingham Women's NHS Foundation Trust Collaborative project (initial case-matching ascertainment)
teratomas any site
births 1995-2007
Scanned or born at BWH

Sep 08

Birmingham Children's Hospital NHS Trust List of West Midlands residents who were treated at BCH for gastroschisis (including BCH ID numbers).
01/01/97-31/12/07
Require for a service review - follow up of outcomes.

Jul 08

Birmingham Women's NHS Foundation Trust Details of all babies antenatally diagnosed with gastroschisis from Jan 1997 - Dec 2007 for babies booked and delivered at BWH.

Required to look at short and long term outcomes of children diagnosed antenatally with gastroschisis

Apr 08

The Shrewsbury and Telford Hospital NHS Trust List of anomaly cases (all outcomes) for Royal Shrewsbury Hospital/Shropshire PCT 01/04/04-31/12/05

Required for local audit

Apr 08

Birmingham Women's NHS Foundation Trust Incidence and prevalence of multiple pterygium syndrome in West Midlands in all cases (pregnancy losses, TOP, infant deaths and livebirths), 2001-2007.

Required for presentation and report.

Dec 07

Royal Wolverhampton Hospitals NHS Trust Numbers and types of anomaly (livebirth and stillbirth) for Wolverhampton 01/01/06-31/12/06

Required as evidence for CNST assessment

Nov 07

Birmingham Women's NHS Foundation Trust List of BWH gastroschisis cases 2002-2006

list of cases - PID not names

Oct 07

The Shrewsbury and Telford Hospital NHS Trust All reported fetal abnormalities within Shropshire births and residents. 01/01/06-31/12/06

Required for local audit of prenatal diagnosis and anomalies

Jul 07

Good Hope Hospital NHS Trust Number and rates of congenital anomalies at Good Hope Hospital 01/01/06-31/12/2006

Required for audit and presentation

Jul 07

Dudley Group Of Hospitals NHS Foundation Trust All pregnancies affected by Trisomy 21 for those born/booked at Russells Hall Hospital 01/04/06-31/07/07

Required for audit

May 07

The Shrewsbury and Telford Hospital NHS Trust Diagnosis, hospital number and gestation of live births with any renal anomaly for babies born 01/01/00-31/12/06 for Shropshire births at RSH.

Sep 06

Worcestershire Acute Hospitals NHS Trust Number of live births with gastroschisis, exomphalos, TOF, OA, CDH in West Midlands 01/01/00-31/12/04.

Required to help plan regional neonatal surgical service.

Jul 06

Heart of England NHS Foundation Trust CVS procedures in Heartlands (case-matching outcomes). Required for audit of outcomes and calculation of procedure related loss rates. For 2005.

May 06

Good Hope Hospital NHS Trust Specifics of abnormalities detected and not detected on ultrasound scans at Good Hope Hospital 01/01/2004 - 30/04/2006. Required for audit of detection rates

Jan 06

University Hospitals Coventry & Warwickshire NHS Trust No. of registered anomalies/type of abnormality/when detected on SBs/NNDs/Live births within Coventry PCT from 01/09/2004-31/08/2005.

For audit on antenatal pick-up rate of abnormalities in hospital - for presentation at audit meeting

Nov 05

Birmingham Women's NHS Foundation Trust Numbers of women who have had terminations for fetal anomaly in region (01/03/04-01/04/05). Required for pre and post natal diagnosis audit.

Sep 05

Birmingham Women's NHS Foundation Trust Confirmed anomaly diagnosis and actual birth outcome for 01/04/04-31/03/05. Required for detailed scan section of department's annual report

Aug 05

Royal Wolverhampton Hospitals NHS Trust Details of abnormalities detected on ultrasound

May 05

Burton Hospitals NHS Trust Number and list of babies born with anomalies at Queens Hospital from 01/01/2004-31/12/2004.

Apr 05

Walsall Hospitals NHS Trust List of anomalies at Walsall Manor Hospital - prenatal diagnosis

Mar 05

Birmingham Women's NHS Foundation Trust Requires outcome data on exomphalos cases - diagnosed and confirmed  from 1999 - 2005.

Mar 05

Birmingham Women's NHS Foundation Trust Outcomes (crude) of cardiac cases diagnoses at BWH.  Abnormal scans BWH to supply list of records for matching.

Jan 05

Royal Wolverhampton Hospitals NHS Trust Annual CAR cases between 01/01/03 & 31/12/03.

Jan 05

Sandwell & West Birmingham Hospitals NHS Trust Anomalies: Numbers & incidence rates for NTD in Sandwell PCTs.