Congenital Anomalies

Date of request

Organisation

Details

Aug 10 Browne Jacobson LLP Intended use: Looking into detection rates of micrognathia/retrognathia prenatally. Analysis requirements: How many micrognathia/retrognathia cases between 2001 to 2005 and how many of those were diagnosed prenatally.
Apr 09 West Midlands Specialised Services Agency Number of infants <1 year with congenital heart disease broken down by disease subtype (in particular acyanotic vs cyanotic) by year for most recent 5 year period. West Midlands

Required for scoping costs and commissioning policy for Palivizumab.
Nov 07 University Number of undiagnosed Down syndrome births at Heartlands, Good Hope and Solihull per year 2004-2007.

Required for study on information giving to parents with ad  Down syndrome child
Aug 07 Birmingham Health and Wellbeing Partnership Number and rates for lethal congenital anomalies for neonatal deaths - Birmingham vs national figures for 2005.

Required for service specification
Mar 07 Local authority NHS Number and anomaly free text of all cases on neonatal system where anomaly text is *CDH* or *diap* or *C.D.H* - 01/01/05 - 30/06/06.

Required for cross matching with WMCAR to establish cohort of cases for research project
May 06 University Number of cases of alobar holoprosencephaly and their outcome in West Midlands. Required to help with caring for a child and to provide parents with info on prognosis. Also required for Diploma in Paediatric Neurodisability.d  Hospice
Dec 05 University Records of anomalies of cleft lip/palate, abdominal wall, cardiac, respiratory, oesophagus, neural tube and urinary tract 1995-2002 study into water chlorination disinfection by-products and adverse human outcomes.  PIAG approved 207(p)2004